My Penpal and ME


As an ME patient I believe a successful treatment will one day become available to us, however, in the meantime I equally believe patients deserve to sit opposite medics who know what ME is, how to diagnose it and how also to support patients through this life changing, debilitating illness. Such support is currently lacking…

Addition, Subtraction, Division


Numbers retired from my life many years ago and I began living from blocks of energy instead of blocks of the clock. The strange thing about such retirement is that I’m often alone in my perception of time and so statements such as “I can’t attend your gathering this evening because I’m going for lunch…

The Variability of Remaining Static


For the most part, my north, south, east and west remain the same four squiggly lines in all directions, my horizon unchanged. However, thanks to the earths tilting axis, its rotation and the earths orbit around the sun, my view changes daily, even if minutely, and as each season appears, a new wardrobe of coloured…

Being a Botoxed 80 Year Old


This week I had my regular check up with my GP and like all other appointments, she was shocked at my blood work, all of which is fine, more than fine, my vitamin levels are cloud high. My B12 soaringly so. I should be bouncing from my couch, not stuck to it. Thankfully, as I’ve…

The Invisibility Clause


Having tried to forcibly remove my friend, myalgic encephalomyelitis, when she showed up on my couch a number of years ago and having failed miserably, I unwillingly allowed her share my space with one condition. She would never become me. She could sit and stare, she could share her nausea, her muscle weakness, bone pain,…

Letting The Past Go


Having ME is a challenge. There’s no point pretending losing a past, in order to plod my way toward my future is easy. But what path in life is?! My past was filled with running, horse riding, yoga, a full time job, frenzied home cleaning, dinner dates, movie dates, walks on a whim, shopping on a whim, driving…