Milly & Tilly


For a girl whose life is dictated by rest and sleep and pacing and all things calming – enter Milly and Tilly. Additions to my garden of flowers and shrubs and trees and a small vegetable patch. Since falling ill, my immediate outdoors have become my sanctuary, my paradise. There’s no need for expensive round…

The Soothing Canvas


Waking from a nights sleep, feeling as though I haven’t slept in weeks, I reach for the toothpaste to wash my hands while my brain desperately attempts to make sense of what should be banal morning rituals. Such desperate attempts at feeling my way around my surroundings can push on into afternoons and evenings as…

The Dress Alteration


Six years ago (almost to the day) I received a phone call from my doctor announcing whatever alien species had invaded my body weeks earlier –  in late December  – had taken his UFO and flown elsewhere. Her delight mirrored by the fact my ESR reading had dropped, my bloods were reading normal and nothing…

The Missing Link


Your parcel is travelling between our Northwest and West depot. Sometime after my sixth reading of an e-mail yesterday, I realised what this short sentence of words were actually saying to me. The terse statement finally showing its meaning. Up until then, I thought the words meant my parcel was on a van and out…

Finding the Pause Button


I might as well spend my time with my hands down the seams of my couch, trying to find a cache of hundreds of Euro, as attempting to find the remote control. More specifically, the pause button on this elusive remote control. The problem begins with the fact Christmas, for most, means time off work…

When you find yourself saying No


No is a word overused within the walls of this household. However I’ve yet to discover a more appropriate word, its two short letters enough to stop something from happening. It’s a word I found myself using most recently when about to do a daily Sudoku puzzle in a newspaper. Suddenly, realising I was to…

One step on a long road of steps?


Having an illness such as ME, you become accustomed to ignorant comments. Such words are part and parcel of living with a condition that few know and understand – most of the knowledgeable people being patients, not the wider world – . However, when you sit opposite a doctor and listen to their illiterate spews,…

Autumn Abound


As hues of yellow and brown creep their way onto my autumn canvas and the earth transitions, I find myself too transitioning, teetering between long summer hours and the brevity of winter days to come. And so the last hurrah of sorts occurs, a final nod toward what was and what’s about to be. The luxury…

Addition, Subtraction, Division


Numbers retired from my life many years ago and I began living from blocks of energy instead of blocks of the clock. The strange thing about such retirement is that I’m often alone in my perception of time and so statements such as “I can’t attend your gathering this evening because I’m going for lunch…