On May 11th a wonderful group of Irish patients, their family and friends took to Dáil Éireann for a four hour protest highlighting the lack of services and understanding in today’s Ireland for ME patients.
The protest was run in conjunction with the international protest “Missing Millions” and those of us unable to attend were represented by pairs of our shoes (Mine were pink runners with my toe tag saying “missing from Athenry AC – my local running club”).
Thankfully some TD’s gave up their time to listen and TV3 News broadcast a segment on their evening bulletin and the Irish Examiner also published an article.
Every time I think we’re facing a brick wall, one piece gives way and reignites the ember of hope. Thankfully that ember continues this May.
In addition to the above, two wonderful pieces relating to life with ME appeared in the Irish Times and Irish Independent. Also, regional newspaper the Connacht Tribune gave up its print to interview me and on Galwy Bay FM, a patient was too interviewed.
Finally, The Irish ME/CFS Association has arranged for Dr Ros Vallings, an ME expert from New Zealand, to give 3 Irish ME/Chronic Fatigue Syndrome talks this May.
Dr Ros Vallings has written 3 books on the subject in recent years: (i) Chronic Fatigue Syndrome M.E. Symptoms, Diagnosis, Management (352 pages), (ii) Managing ME/CFS A Guide for Young People (144 pages) and (iii) The Essential Guide to CFS/ME which is being released this year. And brings a wealth of clinical experience from 50 years dealing with ME patients.
Admission is €5, on the door:
Wednesday May 24: 7:30 PM – Maldron Hotel, Sandy Road, ( off Kirwan Roundabout on Headford Road), Galway City.
Friday, May 26: 11:30 AM – South Court Hotel, Raheen, Limerick
Sunday, May 28: 2:30 PM – The Maldron Hotel Dublin Airport