Posted in Accepting ME

A Midsummer Night’s Dream, almost

It’s been a busy summer, one house martin nest is complete on my gable end and having noticed the decline in activity within the nest of starlings in nextdoor’s eves, I can only assume the chicks have fledged. Or rather, hope.

A set of crows were chased off by the starling parents recently, their beaks optimistic for some chicks for their own feasting brood. As for the magpie nest within the ash tree to my west, that has undergone an impressive extension. Mostly made from the boughs of hawthorn trees.

No matter what window I peer from or what angle I amble within my garden, life is plentiful. Nature working overtime.

Busy not only appears to be an adjective confined to my garden this summer. Out there, out in the ME world, a lot of murmuring’s and chattering’s are expanding.

On June 6th a fantastic article penned by Sean O’Briain and entitled “Living with one of the last major diseases we know nothing about’ was published in the and can be viewed here. And today I read this wonderful piece by Cort Johnson, debunking further the highly flawed PACE Trial. To quote the article:

the latest and perhaps most devastating blow to the PACE trial yet – an open critique from Rebecca Goldin, the director of, and Professor of Mathematical Sciences at George Mason University. Goldin’s entry into the debate indicates that the PACE trial controversy is now bigger than ME/CFS; that it’s being held up and examined in the medical community as a case study of a major research effort gone wrong.

“Dramatic” alterations in recovery criteria as the trial was underway made it easier for the authors to label the patients as “recovered”. Goldin cited the now notorious alteration which made it possible for patients to meet the criteria for ME/CFS and be classified as recovered from it at the same time.

And to think midsummer’s night has yet to arrive!